Patient and Public Involvement and Engagement in research – A …

English Text : Guideline Project management Engagement ... Collaboration Public Participation in Science and Research ...

This guide is for learning why and how to meaningfully involve patients and the public in research. In Chapter 1, you find a detailed description about what Patient and Public …

Short guide on patient partnerships in rare disease research projects

English Text : Guideline CS stories Engagement ... Collaboration Engagement ...

This guide has been developed with the help of a working group comprising of patient representatives and research funders and has been submitted for review by independent academic researchers. Its …

Mapping citizen science contributions to the UN sustainable development goals

English Text : Scientific Publication Best practices CS stories ... Sustainable Development Goals (SDGs)

The UN Sustainable Development Goals (SDGs) are a vision for achieving a sustainable future. Reliable, timely, comprehensive, and consistent data are critical for measuring progress towards, and ultimately achieving, the …